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è„Šé«„å°è„³å¤‰æ€§ç—‡ (10)
発病経éŽã‚„治療ã€ãƒªãƒãƒ“リã®è¨˜éŒ²ã€‚日記ã€æŽ²ç¤ºæ¿ã€é‡Žé³¥ã¨æ˜†è™«ã®ã‚¹ãƒ©ã‚¤ãƒ‰ã€‚
http://www.geocities.jp/xy3118/
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http://www.ne.jp/asahi/ssy/arare/
SCDã¨å¤šç™ºæ ¹ç¥žçµŒéšœå®³ã‚’æ‚£ã†ä½œè€…ã®é—˜ç—…・リãƒãƒ“リã®è¨˜éŒ²ã€‚
http://will.kuronowish.com/
SCDã¨ã¯ã€‚活動内容ã¨å‡ºç‰ˆæ¡ˆå†…。医療相談ã€äº¤æµä¼šæƒ…å ±ã€‚
http://homepage3.nifty.com/jscda/
難病ã®å¦»ã¨ã®è¨˜éŒ²ã€‚ãƒãƒªã‚¢ãƒ•ãƒªãƒ¼ã®å·¥å¤«ä¾‹ã€å…¬çš„宿泊施è¨ã®åˆ©ç”¨ãƒ¡ãƒ¢ã€‚
http://www.infoaomori.ne.jp/~iwamoo/
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http://plaza.rakuten.co.jp/yumiheku/
è¿‘ç•¿SCDå‹ã®ä¼šå“¡ã§æ¯”較的若年齢ã§ç™ºç—‡ã—ãŸãƒ¡ãƒ³ãƒãƒ¼ã«ã‚ˆã‚‹æƒ…å ±äº¤æ›ã®å ´ã€‚
http://kinki-scd.sakura.ne.jp/
国立療養所神経ç‹ã‚°ãƒ«ãƒ¼ãƒ—ã«ã‚ˆã‚‹ç–¾æ‚£ã®è§£èª¬ã€æ²»ç™‚法・リãƒãƒ“リ・ç¦ç¥‰ãƒ»ç¤¾ä¼šè³‡æºã®æƒ…å ±ã€‚
http://www.niigata-nh.go.jp/nanbyo/scd/scdindex.htm
ã“ã®ç–¾æ‚£ã‚’æ‚£ã†ä½œè€…ã®é—˜ç—…ブãƒã‚°ã€‚
http://blog.goo.ne.jp/5t6y7uop/
Last Updated: 2007-01-02 19:06:35
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